Resources

Factor Health Management, LLC
www.factorhealth.com

LadyBugs, LLC
www.ladybugsupport.com

MUMS
www.thewordismums.com

Health Resources and Organizations

American Association of Blood Banks
www.aabb.org

Centers for Disease Control and Prevention
www.cdc.gov

Hemophilia Treatment Centers
www.hemophilia.org

MASAC (Medical And Scientific Advisory Council)
Link to “Researchers and Healthcare Providers”
www.hemophilia.org

National Council on Disability
www.ncd.gov

National Disability Rights Network
www.napas.org

National Heart, Lung, and Blood Institute
www.nhlbi.nih.gov

National Organization for Rare Disorders (NORD)
www.rarediseases.org

PPTA (Plasma Protein Therapeutics Association)
www.patientnotificationsystem.org

World Health Organization
www.who.int/en/

Links to products that contain aspirin

http://www.lifespan.org/services/surgery/TMH/Guide/aspirin.htm

(Requires Adobe PDF reader)

http://www.cincinnatichildrens.org/NR/rdonlyres/0C7F1B7B-F1DF-4085-9196-85AC54D50CEC/0/aspirinproducts.pdf

http://www.feingold.org/sas.html

Links to products that cause unexpected bleeding

http://archives.cnn.com/2000/HEALTH/03/06/anesthesia.herbs/

http://www.mayoclinic.com/invoke.cfm?id=SA00040

National Support Organizations

Hemophilia

Hemophilia Federation of America
www.hemophiliafed.org

National Hemophilia Foundation
www.hemophilia.org

World Federation of Hemophilia
www.wfh.org

HIV

AIDSInfo
www.aidsinfo.nih.gov

AIDS.Org
www.aids.org

Joint United Nations Programme on HIV/AIDS
www.unaids.org

Hepatitis

American Liver Foundation
www.liverfoundation.org

American Association for the Study of Liver Diseases
www.aasld.org

COTT-Community of Ten Thousand
www.cott1.org

Hepatitis B Foundation
www.hepb.org

National Hepatitis C Coalition
www.nationalhepatitis-c.org

Product Manufacturers

Baxter
www.baxter.com
www.hemophiliagalaxy.com

Bayer
www.bayer.com
www.kogenatefs.com

CSL Behring
www.cslbehring.com

Grifols
www.grifols.com

Novo Nordisk
www.novonordisk-us.com
www.novoseven.com

Wyeth/GI
www.wyeth.com
www.hemophiliavillage.com

Patients and Caregivers

Advocacy

Hemophilia Federation of America
Link to “Legislative Action Center”
http://capwiz.com/hemophilia/home/

National Hemophilia Foundation
Link to “Advocacy”
www.hemophilia.org

Insurance

Baxter
Factor Assist Program
Link to “Health Insurance”
www.hemophiliagalaxy.com

Bayer
Factor Solutions
Link to “Patients and Caregivers”
www.kogenatefs.com

CSL Behring
Assurance Program
www.cslbehring.com

CMS (Centers for Medicaid and Medicare Services)
www.cms.hhs.gov

Grifols
PatientCare Program
Grifols Assurance for Patients (GAP)
www.grifols.com
 

Novo Nordisk
Seven Secure Program
www.novoseven-us.com

PSI (Patient Services Incorporated)
www.uneedpsi.org

U.S. Department of Labor (Cobra Information)
www.dol.gov

Wyeth
Factor Resource Program
Link to “Programs and Services”
www.hemophiliavillage.com

Research

Avigen
www.avigen.com

The Scripps Research Institute
www.scripps.edu

Time for a Cure Program
www.hemophilia.org

Education

Universal Precautions Presentation
Universal Precautions Power Point

Healthcare Professionals

Hemophilia Emergency Care
http://hemophiliaemergencycare.com